it’s never really gone

dunno… ever since I went all-in with composing things just seemed to be… fantastic. I loved what I was doing. I was getting so much love and support from the people close to me. there were a few blissful days when everything just felt right, and I was genuinely happy. like not 100% happy 100% of the time, I still felt the full range of human emotions. I still got frustrated, and doubted myself, and felt guilty about composing while other people (e.g. Fox) work soul-crushing jobs to put food on the table… but for once when people asked how I was I could honestly say that my life is good.

for once I wanted to talk about my life. and people seemed to enjoy watching my face light up when I did so.

and every day I’ve been loving my husband more and more, appreciating him more and more. (especially since he’s being so super supportive!) we went away last Friday to celebrate our five-year wedding anniversary, just a night at a bed and breakfast, and it was wonderful. tbh we hadn’t been sleeping together – in either sense – for quite a long time, and we both wanted to change that. well, it seems all we really needed to do for the more entertaining interpretation of that phrase was spend some time cuddling in a comfortable bed with the intention of being close. no distractions. no technology. just our love for each other. it was amazing!

we had gaming on Sunday, which was awesome and fun [and interestingly enough involved one of the other player characters (PCs) getting married. among other things, my character coordinated with a third PC and some intelligent animals to incapacitate mercenaries who had stolen dishes and kidnapped part of the catering staff. I had a blast sneaking around, shooting arrows past the mercenaries’ ears, throwing things to mislead them regarding my location, and scaring the pants off one of them – ironically enough, while naked (to make better use of my character’s camouflage mutation). then some intelligent flying squirrels volunteered to serve food at the wedding, and somehow most people were okay with that…] gaming went on for a long time though, with kibitzing afterward, so by the time Fox convinced me to get off Discord and go to bed I was completely emotionally exhausted. like ready to cry exhausted.

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To Live…

I reached out to the graduate music composition program at my school about 3 weeks ago. They asked me to email my portfolio and said we need to schedule an interview, during which they’ll test my theory and aural skills. I took about a week and a half to prepare my portfolio, which unfortunately meant that the fall semester was already starting by the time I emailed it. Until recently I was still hopeful that I might be able to make the transfer in time to start taking classes, and I was getting very anxious about it.

On Tuesday I let go of starting this semester, mostly because Wednesday marked the end of the add/drop period. That helps somewhat: I actually prefer the idea of starting in the spring and not having to rush. It would be rather stressful to jump into graduate courses after missing the first meeting or two, especially since 1) I’ll be getting used to a new approach to music, new professors and new classmates and 2) it’s been a couple years, I’m feeling a bit rusty…

I’m still anxious about whether I’ll be accepted, though (reading into the lack of response and lack of indication that they’ve listened to my recordings, which I’d posted online, and which were produced by my notation software – will they judge me for that?) and second-guessing my decision (I have literally 2 requirements left to finish the music therapy degree, but I actively don’t want to do them, but it seems irresponsible not to… and even more irresponsible to incur more student debt when I haven’t earned any income in, gods, almost a decade…)

If I’m not careful I start going down the what-if spiral and getting depressed. What if this doesn’t work out? What if I don’t have what it takes? What if I can never find gainful employment? Etc… I’ve started a new game of Skyrim, in part because I love the game but also to distract myself from existential dread (well that’s a bit melodramatic) worrying about something I can’t control. (Thought occurs that studying theory and practicing my aural skills would be a good use of my time, but I’ve been having trouble getting myself to do it… I want to know I’ve passed this first hurtle and scheduled the interview first…)

Speaking of not having control over things, I’m still kinda feeling things out with the entrepreneurial project (EP) I’ve mentioned a couple times. I thought I was going to be one of the people in charge but 1) I feel a bit out of my league 2) I feel very out of the loop and 3) my friend is calling all the shots (which I can’t really complain about since he’s the one who’s actually gotten it off the ground). We’ve butt heads a few times – especially when stuff got posted that can be interpreted in ways I’m uncomfortable with – and I thought I was supposed to be an editor but people don’t seem to respect or appreciate my input and I don’t know whether they consider me a valuable member of the team or a pain in the ass and it’s agitating my anxiety and depression.

It doesn’t help that helping Banji move followed by over a week of basically composing full time+ to prepare my portfolio essentially derailed my level of involvement and status in the EP.

Part of me is saying I should run now, but another part of me keeps hoping it will get better (and doesn’t want to miss out on the profits, should they happen… eventually). And part of me actually does enjoy doing this – especially certain aspects of it – and the people seem pretty cool… when we agree on things…

Maybe once we’re in our office and have x y z set up and I can focus on q and…

I dunno, I’m kinda worried this might end up being like the Green Party all over again. Complete with serious ideological disagreements about how to handle something we’re all passionate about causing me to question what I thought/hope were/are meaningful friendships. Or maybe my appraisal of the friendship isn’t what matters, it’s whether it can survive these disagreements. My friend has gone from “I want you to be my business partner and keep everything on track” to “if you want to be part of the board all you have to do is invest capital…”

He’s known from the beginning that I don’t have capital – I’m investing my time, energy, and talents… that’s “appreciated” but somehow less meaningful? I dunno I respect that actually putting money into this is a big deal – and very necessary for success – but money isn’t everything. It on its own shouldn’t give one person more authority than another person earns through their labor – and we’re all putting in a lot of unpaid labor. (So basically I think we all should be the board, unless someone doesn’t want to be on it, but that’s not in line with the laws governing the type of company he decided to make – they require at least some “liquid” investment to be on the board… does “liquid” by any chance include blood, sweat, and tears?)

Ugh. Why do I do this to myself? (Because the alternative is either living in fantasy or working a job you hate… and there’s drama everywhere at least have it be drama you’re passionate about…)

I. don’t. know.

I do know that the week and a half I spent preparing my composition portfolio was amazing! I got to revisit and rework pieces I wrote back in college and the years since, going through the creative process. A lot of them were in a program that outputs midi, meaning low audio quality and inaccurate feedback regarding things like relative dynamics (to oversimplify, volume). I copied my compositions into another program that uses samples from live musicians playing real-world instruments, made some major edits to most of them (including re-orchestrating one) wrote some new material for some if not most of them, and playing with dynamics… oh, wow, that was a trip! It felt so good starting with something I was already proud of, seeing how I could make it better, carefully patiently meticulously caressing it like a sculptor working with wet clay, and then the magic when it sounds right… oh, by the gods, to do that for a living…

That would be living…

The only thing is, I need to have some kind of snack food by my desk (or wherever I’m composing) so I don’t starve. And I should really watch my caffeine intake, and make sure I sleep decent hours. I learned the hard way that the extra energy and high and creative fervor isn’t sustainable, and the crash sucks…

If I switch programs I’ll basically be restarting my degree: I only have like 3 classes that I’m fairly certain will transfer over. And I’ll have to take another version of research methods and learn a new writing/citation style. And it’ll probably take at least 3-4 semesters to graduate, no idea how much money but almost definitely adding significantly to the student debt my mother has been amazingly wonderful about paying down for me.

On the plus side, the ‘big bad requirement’ that could possibly pose a barrier to graduating is that I’m required to have one of my compositions performed… you mean have my dream come true!!!

And then there’s no guarantee that I’ll be able to make money doing it.

But oh, to do it… I don’t think I’ve ever wanted anything this badly.

One thing the EP and composing have in common is that they both point to online content creation. The EP involves it directly, while composing probably doesn’t require it but the program coordinators did ask me to post my recordings online and send them links, rather than emailing audio files… It got me thinking about composing and recording the compositions however I can and posting them online and who knows? with things like Patreon maybe that’s all I’ll need to make enough money to live on. and/or I might get commissions. and/or someone might want to hire me for a longer-term project and/or…

I dunno, somehow the depressive what-if spirals are easier to maintain. Like I have to actively stop myself from going down them, whereas with the positive/hopeful ones I think “woah I’m getting ahead of myself” and just… stop.

“This is all wishful thinking. Go get a day job.”
“In what? My B.A. is in music and psychology…”
“Something soul crushing like everyone else.”
“That would probably kill me…”

And besides, ‘everyone else’ is trying to get out of their soul crushing job…

Ah, well, the composition program will email me when they email me. In the meantime I have stuff to do and look forward to with the EP. Banji’s parents want me to sell some stuff for them, that could be a way to at least make some spending money (and get my butt in their house more often, they’re good people). There’s no reason I can’t/shouldn’t compose just because I feel like it – especially if that will help me practice my theory and aural skills. I can post stuff online and who knows? maybe that will help with my application… it will definitely be adding to my portfolio!

If composing is my idea of living then I should live, and have fun with it. And of course there’s still gaming and my friends and my family and and and… so much good in my life, I choose to focus on that.

5 Years!!!

a day with depression turned 5 years old on Tuesday!

Happy Anniversary with WordPress.com! You registered on WordPress.com 5 years ago. Thanks for flying with us. Keep up the good blogging.

I’ll admit I haven’t gone back to look through my 5 years of blogging, and I’ve been posting a lot less regularly as of late, but this blog has been a real help for me. I’m glad I have a space to share experiences that people don’t always talk about (though it’s getting better), that can be rather isolating. I’m grateful for the community I found on WordPress, particularly other mental health bloggers. I miss Blog for Mental Health, maybe we can pick that up again.

In the time since starting this blog I have …

  • had the pleasure of “parenting” 3 pairs of rats
  • learned a great deal about intersectional feminism
  • socially transitioned from the gender I was assigned at birth to nonbinary / enby
  • gotten married
  • become a zillion times more confident and assertive
  • healed a great deal
  • come to accept that mental health “recovery” is a never-ending, nonlinear process
  • made some absolutely amazing friends
  • become engaged in activism and politics
  • learned so much
  • learned that I have so much more to learn
  • figured out what meds work for me – including that I don’t need the clonazepam
  • developed kickass coping skills for anxiety and depression

There’s been a lot of drama in the Green Party as of late, throughout the US and unfortunately also in my state. It breaks my heart, really, because we have much much more important things to focus on. I’ve been feeling incredibly overwhelmed and not focusing on what I need to do to live a fulfilling life.

(Ironically – or perhaps not – the latest drama in my state party is uncannily similar to what happened to someone else back in March:

it has to do with people he loved betraying him, and feeling powerless to change what’s going on in an organization he’s supposed to be a leader of. An organization he led very well, and changed for the better, but that’s not what some of its most powerful leaders – his former and my current friends – are focusing on.

(These same people – my “friends” – are now verbally wrecking the latest person they’ve forced to leave: Ron.)

So, I’ve decided to end my involvement in my state party. I will probably continue to help organize locally, and engage in nonpartisan activism, but I need to take a step back from this stuff and pick up the life I’ve put on hold for a year and a half. I’m grateful for the actual friendships I’ve made, my relationship with Ron, the experiences I’ve had, everything I’ve learned, the skills I’ve developed, all of it.

Now it’s time to start a new chapter.

Just Lamotrigine

… yeah. I didn’t take the trazodone Wednesday night, nor Thursday, nor last night. And I’m doing better. I feel like I’ve woken up from a bad dream. And speaking of dreams, I’m back to my usual anxiety dreams – which I KNOW are dreams once I wake up. So much better.

My anxiety is kinda overwhelming tho. I’d almost forgotten what it was like to feel like this. I have a thing I need to be not only present at but act in a professional capacity. I think I can deal with it, but I’d wanted to go to a cultural event at my local library – no pressure there, just show up have fun and leave. But I was kinda freaking out about it – especially the leaving and getting to my later commitment on time part – so I guess I’m not gonna go. It’s just easier that way. There will be other opportunities … right?

*sigh*

I’m kinda doubting whether I’ll ever be able to find and maintain gainful employment.

I don’t want to stay on just lamotrigine, and either way I’ve been thinking for a while that it would be good to increase my dose slightly. I’m debating whether I should ask to go back on fluvoxamine or clonazepam. The former was a rocky start, but I got used to it and I think staying on it might’ve been good for me. The latter … I don’t think I ever had any problems with it – I don’t remember any. It helped with my anxiety. It’s not the safest med in the world but you know what, fuck it. I’d rather be functional while I’m alive than live longer.

Something tells me getting my prescriber to agree to this won’t be easy. I’m writing her a letter in hopes that will prevent me from ‘acting irrationally’ at our next appointment.

Quit Playing Games with My Brain

Disclaimer: Anytime I write about medications, I’m sharing my own thoughts and experiences. This is NOT medical advice.

I had a rough time on the fluvoxamine maleate, at least initially. September was a stressful month anyway, though. So, it’s kinda hard to determine whether the problems I faced were a response to stress, a reaction to my meds, or some combination. All I know is I started occasionally mispronouncing words that normally I’d have no problem pronouncing correctly. I had to stop most of my Green Party activity because I was getting too overwhelmed. And I was suicidal.

I visited with Banji the first weekend in October and felt much, much better by the end of it. But I’d already told my prescriber about being unhappy with the fluvoxamine, and she’d already switched me to a new medication. Almost reluctantly, I weaned myself off fluvoxamine this past weekend and started taking trazodone.

The only things I’m happy about on trazodone are that 1) I’ve stopped mispronouncing words, and more importantly 2) I had the good sense to make sure I wouldn’t be driving for 5 hours on a new med!

Since I started taking trazodone Sunday night, I’ve had weird, vivid, disturbing dreams that it’s taken me a while to realize (once awake) were dreams. I’m having a harder time falling asleep, in part because the occasional involuntary muscle movements are becoming more frequent. I feel like I’m having trouble staying asleep, but that could be because my sleep cycle is shifted later than it should be. I feel groggy and tired. I’m anxious and having trouble concentrating and following conversations. On Monday while driving I couldn’t see the sign for the place we were going until we were practically there. When people gave me directions I heard “right” and thought “left” until the last moment. When I speak I’m too aware of my mouth movements and I feel like I’m listening to someone else.

When I told Ron about this stuff, ze said, “If you feel like your brain is broken, the trazodone is doing its job. It’s a hospital med used to shut down the brain of a patient who is psychotic and make them sleep. As an outpatient, if you are not psychotic, you have no business taking those meds.”

Ze urged me to find a new prescriber. I … I can’t. Not like this. And even if I were 100% on top of everything, I’d probably have to make my first appointment at least a couple months in advance. And that’s assuming the places I called even had mental health prescribers available – most are already overwhelmed with too many clients.

IF I remember our conversation correctly, my prescriber said I could try this med for a few days and stop taking it if I didn’t like it. I’m sure I remember her telling me I don’t have to wait a whole month, and I don’t think she said I should call before stopping. But I’ve been thinking for a while that I’d rather take just the lamotrigine if that’s what it takes. Maybe all I need is another slight increase, I’m on a pretty low dose.

Being on clonazepam wasn’t perfect, and I know there can be risks – particularly addiction. I feel like my sleep was more satisfying on the fluvoxamine. But I miss the way my brain worked on clonazepam. I rarely felt anxious – that’s probably the most important thing. I might’ve felt depressed, but I was functional. I knew I could do what I needed or wanted, and when I tried I would usually succeed. Now …

Good Bye Clonazepam

I took my last dose of Clonazepam today. I’d been thinking for a while that it might make more sense to stop taking it than to fill the new prescription and drag out another month of taking these half-doses, which don’t do the job but still run the risk of interactions and side effects. I called my prescriber to make sure that would be okay, and she gave the go-ahead. So starting tomorrow I’ll just be taking Lamotrigine, Fluvoxamine Maleate, and the supplements I’ve found helpful: omega 3, vitamin D, and a vitamin B complex.

So far I haven’t noticed any ill effects from the Fluvaxamine, so I guess that’s a good sign. I don’t really feel like it’s kicked in yet; I hope it does soon because I’ve been … well … I’ve spent the last 3 days inside playing Skyrim all day. Today I kept getting interrupted and feeling too overwhelmed to do anything useful, so more Skyrim. Mostly because of politics, drama, and financial issues that I don’t really feel like getting into right now … though … I dunno, other folks are venting to me, and I don’t know who I can talk to about it so … whatever.

New Prescriber, New Meds

I had my second appointment with my new prescriber last week. At our first appointment, she told me she’s not a fan of one of my medications, Clonazepam, and said she wants to start weaning me off it so I can start taking something else. She wanted to put me on a SSRI (selective serotonin reuptake inhibitor) “to help with both depression and anxiety.” I resisted because I’ve had bad experiences with two different ones. There were no changes to my meds last month.

But this month she reiterated the need to get me off Clonazepam and told me to start cutting the pills in half. She also said there are medications that help with hording and prescribed me one, Fluvoxamine Maleate. It’s a SSRI. I’m torn between not wanting to take it because I’m scared of how it might affect my brain and the rest of my body – and wanting to take it because I can use all the help I can get to deal with this hording.

I talked to Wakana about it and she seemed very concerned about the change in meds, especially since I only just started seeing this prescriber. I’ve been taking half doses of Clonazepam since September 1st; so far I’ve already had two days (Monday and today) when I felt ill enough that it affected my functioning, and almost kept me from following through on important plans. I’ve been feeling down, slightly queasy, less sure of myself, tired, anxious, freezing (as in fight, flight, or freeze), and sometimes twitching – in other words, like crap. I suspected on Monday that I was having withdrawal symptoms; Wakana confirmed it today. I have an important meeting tomorrow at noon, and another Friday evening; I don’t have time to malfunction because of changes to my meds.

I’d say “especially changes that are based on the prescriber’s philosophy rather than the medication’s effects on me,” but it’s a little more complicated than that. Clonazepam can be addictive, it has interactions with a lot of things, and I was questioning how much it’s been helping me. I feel like I need more support vs the depressive symptoms than I’ve been getting from Lamotrigine. (There’s no way I’m going off that, though. It keeps my brain from trying to kill me.) To this prescriber, at least, all signs seem to point to SSRIs. I don’t quite get why she’s so obsessed with them.

I’m starting a new bottle of Lamotrigine tomorrow, so I figure it’s a good time to start taking the Fluvoxamine. But I’m really not sure whether it’s the right choice – especially since Wakana pointed out that I’m already addressing the hording without this med, and we agreed that many of the problems I’m facing can only be addressed by getting Fox to take responsibility as well. What will this stuff do to me?

I don’t know, but Wakana suggested tracking my mood and I think it’s a good idea. I’m not sure exactly how I want to do it though – I’ll probably find an app – and I’m annoyed that I don’t have a way to get a baseline. I’d rather not do one retroactively, I’m already having issues because of one change in meds, and I was having issues before that due to interpersonal drama – in short, there are too many variables to determine whether whatever I’m experiencing has anything to do with a particular medication.

I’m just feeling more and more like I want to be done with everything. That’s not a good sign…